Everything You Need

CF RESOURCES
& TOOLS

Curated resources for patients, families, donors, and advocates locally in Charleston, SC and nationwide.

Patients & FamiliesDonate & SupportAdvocacySponsor CF BitesFAQ
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For Patients & Families

Trusted resources for navigating life with cystic fibrosis

Cystic Fibrosis Foundation Main Site

Essential

The national hub for CF research, news, patient registry, and advocacy. The CFF has been the driving force behind every major CF therapy.

www.cff.org→

CFF Care Center Finder

Local

Locate an accredited CF care center near you, including MUSC in Charleston, SC one of the Southeast's leading centers.

www.cff.org→

MUSC CF Center Charleston, SC

Local

Medical University of South Carolina's dedicated CF program serving the Lowcountry and surrounding region.

muschealth.org→

Trikafta Patient Assistance

Financial

Vertex Pharmaceuticals offers patient support programs to help with access and affordability of CFTR modulators.

www.vertex.com→

CF Foundation Compass (Financial Assistance)

Financial

Personalized assistance navigating insurance, financial resources, and accessing CF medications and services.

www.cff.org→

Newborn Screening for CF

Education

Information on early detection all 50 states screen for CF at birth. Early diagnosis leads to dramatically better outcomes.

www.cff.org→
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Advocacy & Education

Raise your voice for the CF community

CF Foundation Advocacy Center

Advocacy

Take action on CF policy from drug access to insurance coverage. The CFF's advocacy arm fights in Congress for every patient.

www.cff.org→

CF Awareness Month (May)

Education

Every May, the CF community raises awareness nationwide. Here's how to participate and amplify the message in Charleston and beyond.

www.cff.org→

SC Association of Nonprofits

Local

The SCANPO represents South Carolina's nonprofit sector a community CF Bites is proud to be part of.

www.scnonprofits.org→

Candid / GuideStar Nonprofit Data

Trust

Research nonprofit organizations and their financial transparency. Candid helps donors make informed giving decisions.

www.candid.org→

Charleston Metro Chamber of Commerce

Local

CF Bites is part of Charleston's civic fabric. The Chamber connects us with local businesses and community leaders who share our values.

charlestonchamber.net→

CFF Patient Registry Annual Report

Research

The definitive annual report on CF outcomes, treatments, and demographics. Essential reading for advocates and medical professionals.

www.cff.org→

Everything Answered

Frequently Asked Questions

How do I find a CF care center near Charleston, SC?+
MUSC Health in Charleston is an accredited Cystic Fibrosis Foundation Care Center, offering specialized CF care for patients across the Lowcountry. You can also use the CFF's Care Center Finder at cff.org to locate the nearest accredited center.
What financial assistance is available for Trikafta (elexacaftor/tezacaftor/ivacaftor)?+
Vertex Pharmaceuticals offers patient support programs to assist with access and cost of Trikafta and other CFTR modulators. The CFF Compass program also provides personalized help navigating insurance and financial resources. Contact CFF Compass at 1-844-COMPASS or compassinfo@cff.org.
Is CF Bites Foundation a 501(c)(3) organization?+
Yes, Charleston CF Bites Foundation is organized as a 501(c)(3) nonprofit. Donations are tax-deductible to the fullest extent permitted by law. Our EIN is available upon request.
How do I become a corporate sponsor of CF Bites?+
We offer tiered sponsorship packages for our annual gala and year-round events. Sponsors receive brand recognition across all CF Bites channels, event signage, and the knowledge that their investment directly funds CF research. Download our sponsorship deck to see every level. Download it here.
Does CF Bites Foundation serve patients directly or fund research?+
CF Bites Foundation primarily fundraises to support the Cystic Fibrosis Foundation's national research and advocacy mission. We also work to connect local families with resources, care centers, and community support in the Charleston and Mount Pleasant area.
What local events does CF Bites host in Charleston?+
CF Bites hosts an annual gala and fundraising events in the Charleston area, typically in the fall. Past events have been held at Holy City Brewery and other local venues. Join our email list to be notified about upcoming 2025 events.
Can people without CF donate to CF Bites Foundation?+
Absolutely in fact, the majority of our donors are community members, local businesses, and friends who want to make a difference in the fight against cystic fibrosis. No personal connection to CF is needed to help fund a cure.
What is the Cystic Fibrosis Foundation's relationship with CF Bites?+
CF Bites Foundation is an independent nonprofit that fundraises in alignment with the Cystic Fibrosis Foundation's mission. We channel community generosity toward CFF-supported research and patient programs, working as a local key driver for the national mission.

Cystic Fibrosis Resources in Charleston, SC

If you or a loved one is living with cystic fibrosis in the Charleston, South Carolina area, you have access to world-class care at MUSC Health, one of the region's leading accredited CF care centers. Early diagnosis through newborn screening, access to CFTR modulator therapies like Trikafta, and a supportive local community are all available to you here in the Lowcountry.

CF Bites Foundation was founded in Mount Pleasant, SCand serves the greater Charleston area. Our annual gala brings together the region's most generous community members, local businesses, and healthcare professionals to fund research and celebrate progress.

For families facing the financial burden of CF - Trikafta costs approximately $300,000 per year - financial assistance programs are available through Vertex Pharmaceuticals and CFF Compass. No family should face this disease without support. If you need help navigating these resources in South Carolina, contact us.

Can't Find What You Need?

Reach out directly. We're a real team, based in Charleston, and we'll get back to you.