Nicole Gordon is a Charleston-based writer and advocate who covers cystic fibrosis research, patient stories, and nonprofit community building. She has followed the CF Bites Foundation since its founding and brings a personal commitment to making CF science accessible and actionable for patients, families, and donors.
Writing
Articles by Nicole Gordon
Is There a Cure for Cystic Fibrosis Yet? Where Things Really Stand in 2026
The honest answer to the question every CF family gets asked. A plain-English look at CFTR modulators, gene therapy, and how close science actually is to a cure for cystic fibrosis in 2026.
ALYFTREK Is Here - And It Changes Everything for 95% of CF Patients
The FDA has approved expanded use of ALYFTREK and Trikafta, making CFTR modulator therapy available to approximately 95% of all people with cystic fibrosis in the United States. Here's what it means.
Yale Researchers May Have Found a Cure for CF - Before a Baby Is Even Born
In a landmark June 2025 study published in PNAS, Yale researchers used gene-editing nanoparticles to correct the CFTR mutation in mice before birth - durably, across multiple organs, into adulthood. The implications for human CF treatment are profound.
The 10% Problem: mRNA Therapy Targets the CF Patients Trikafta Can't Reach
Approximately 10% of people with cystic fibrosis have mutations where Trikafta doesn't work. mRNA therapy - the same technology behind COVID-19 vaccines - may be their best hope. Here's where the research stands.
Gene Therapy Breakthrough: 88% Chloride Function Restored for CF's Rarest, Hardest-to-Treat Mutations
A new nanoparticle-based CRISPR approach has restored 88–100% of chloride channel function in lab cells carrying the G542X mutation - one of the most severe CF mutations affecting patients current drugs can't reach.
Scientists Break Antibiotic Resistance in CF Lung Bacteria - A Major Step for Lung Disease
A study published in April 2026 discovered how to disable both individual antibiotic resistance and cross-protection between bacteria in CF patients' lungs, making previously untreatable infections vulnerable again.
From 2 Years to 61: How CF Life Expectancy Was Transformed - and Why the Fight Isn't Over
In the 1960s, a CF diagnosis meant a child was unlikely to reach school age. Today, the projected median survival is 61 years. This is the story of how science, community, and relentless fundraising rewrote the future of cystic fibrosis.
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